Big Big Plans

Heya Spoopies!

I have big big plans for around here. I’m looking into purchasing a domain and hosting, which means I will be moving this blog off of wordpress shortly. Also, I have bigger and brighter plans for the expansion of Even Without Wings, so it may be a bit messy around here for a bit. I apologize in advance for that. Mind the gap (and a crap ton of broken links, I’m sure) during the construction period.

Cheers,

JIL

Not Enough Spoons to Even Give a Fork

..and an exhaustion so deep a 9 year nap/coma couldn’t help it.

In my last post I spoke about the fact that I was switched over to the generic version of Cymbalta because my insurance company didn’t want to pay the insane price for the actual name brand version. I was okay with this idea because the co-pay was much lower, and I’ve used generic versions of things in the past without issue. There cannot be that big of a difference between the two, can there? They had to have been approved for sale by the FDA! Well, I was wrong. There is enough of a difference.

I remember my father telling me years ago that the generic version of a medication he was taking at the time didn’t even show up in his blood even though he was taking it daily. When they did his blood work it was nowhere to be found, even though the brand version worked fine and did show up. That should be enough anecdotal evidence to realize there’s a difference.

I started the generic version a month ago this coming Wednesday. I saw my general practitioner doctor (the one who prescribes it to me) on the fourth of July, and got her to write no substitutions on the script so that I can switch back. I didn’t have the money to pick up the actual version (it’s a $60 co-pay every month) so I have to wait a little while, but after what happened to me this past week, I’m going to try my damnedest to get the brand version A.S.A.P. This post will be about my experience on the generic so far.Read More »

skINSANITY and allerGEEZ

Heya Spoopy Spoonies!

I know, I know, I haven’t updated in a dogs age even though I promised you I would. But, as I’m sure my fellow spoonies are aware, life gets in the way of even the best laid plans sometimes. Since I’ve been feeling relatively well up until the last few days, I’ve been busy enjoying myself. It’s been a while since life felt ‘normal’ to me, and I needed to just live for a while. So, that’s what I’ve been doing. Enjoying my good days.

Read More »

Entry Numero Uno!

Hellllllooooo There.

This is my first blog entry, so I’m not sure how to approach things. Really, I’m just feeling my way through the dark here. Testing the waters. Finding out which style of writing and what content you will all prefer. I also have quite a lot of ideas for blogs, so if things end up getting lumped together, I apologize. I’ve got everything listed on my phone with seven-thousand reminders set because I have the memory of a goldfish. (Actually, that’s a misnomer. Goldfish actually have better memory than me, really.)

So what shall we touch upon first? I guess firstly I should introduce myself.

Hi, I’m Jil! I have a bit more about me in the “about a girl” section, and you can find me on various places on the interwebz if you are curious to know more about me. But basically, I’m a 29 year old Canadian chick, who has been diagnosed with several chronic illnesses (because they like to travel in packs.) These illnesses like to bring along chronic pain with them, because that’s just how they roll. One of them likes to mess with my heart, and make standing and exercise difficult. It also likes to make me faint at inopportune moments. And, one is neurological and likes to make walking difficult on occasion, so now I have a cane that I bring with me. If I don’t need it I can fold it up and put it in my overly-large purse, which is very handy. Some of them like to mess with my cognition and give me brain fog. And one of them likes to kick me in the pelvis occasionally and make me run to the nearest washroom about 2,700 times a day. It’s delightful, but you must have a sense of humour about this stuff, because it will eat you alive if you don’t.

Next, I should probably discuss why it took so long for me to get this show on the road. Read More »

Under Construction

Hey there folks. Thanks for stopping by!

As you can see there is nothing here yet. I am just in the beginning stages of putting this blog together. A couple things are standing in my way, such as my laptop refusing to connect to my wifi, and some new health issues that sprang up over the last week or so that i need to take care of first. (That’s bound to happen considering this blog is going to be about dealing with chronic illness)

So, please be patient while things start tl slowly fall into place. If you were to frequently return you will see a few different things appearing and some slight changes as i figure out the logistics of things and how I want things to look.

In the mean time, you’re welcome to follow me on instagram and I will announce there when things are up and in working order.

Thanks for being patient with me during this process. Its greatly appreciated.

Cheers,

JIL